RAK BUKU

 bookshelf

ALS Functional Rating Scale (ALSFRS): misalnya di website ALS of Michigan, www.alsofmi.org; di Oxford MND Centre: www.oxfordmnd.net, form interaktif di ALS CARE Program: http://www.outcomes-umassmed.org/ALS/alsscale.aspx

ALS Society of Canada, 2010, “A Guide to ALS Patient Care for Primary Care Physicians”, www.als.ca

ALS Society of Canada, ?, “When Someone Special Has ALS: A Booklet for Chidren”, www.als411.ca

ALS Society of Canada, ?, “When Your Parent has ALS: A Booklet for Teens”, www.als.ca

ALS Society of Canada, ?, “Helping Children Cope with ALS: A Parental Information Guide”, www.als.ca

ALS Association, www.alsa.org/research

ALSWorldWide, http://www.alsworldwide.org

Ampong, M-A. et al, ?, “Management of Respiratory Insufficiency in ALS/MND patients: An Evidence-based Review”, Oxford Centre for Evidence-Based Medicine, www.cebm.net

Baltadzhieva, R., Gurevich, T, dan Korczyn, A.D., 2005, “Autonomic impairment in ALS”, Current Opinion on Neurology, Vol. 18, Issue 5, 487-493

Beck, M. et a, 2002, “Progressive sudomotor dysfunction in ALS”, Journal of Neurology Neurosurgery Psychiatry, 73:68-70

Bouteloup, C. et al, 2009, “Hypermetabolism in ALS patients: An early and persistent phenomenon”, Journal of Neurology, 256, 1236, doi: 10.1007/s00415-009-5100-z

Camdessanché, J-P. et al, 2011, “Sensory and motor neuropathy in patient with the A382P TDP-43 mutation “, Orphanet Journal of Rare Disease, 6:4, http://www.ojrd.com/content/6/14

Chida, K., Sakamaki, S., dan Takasu, T., 1989, “Alteration in autonomic function and cardiovascular regulation in ALS”, Journal of Neurology, 236, 127-130

Clegg, B., 2012, “The Universe Inside You”, Icon, London

Dal Bello-Haas, V. dan Florence, J.M, 2013, “Therapeutic exercise for people with ALS or MND”, Cochrane Database Syst. Rev., 31:5:CD005229, doi: 10.1002/14651858.CD005229.pub3

Daley, G., 2012, “The Promise and perils of stem cell therapeutics”, Cell Stem Cell., 10(6):740-749, doi: 10.1016/j.stem.2012.05.010

de Sepulveda, L. B. (editor), 2004, “Respiratory Care”, ALS FYI Series, ALS Association, www.alsa.org

Dupuis, L. et al, 2011, “Energy metabolism in ALS”, Lancet Neurology, 10: 75-82,doi: 10.1016/

Determining Terminal Status Checklist: Rainbow Hospice Care, www.rainbowhospicecare.org

Ehrlich, B., 2010, “A portrait of the scientist as a young artist”, The Beautiful Brain, thebeautifulbrain.com

El Escorial Criteria: misalnya di website ALS Association, www.alsa.org

Fitzgerald, K.C. et al, 2012, “Intakes of vitamin C and carotenoids and risk of ALS: pooled results from 5 cohort studies”, American Neurological Association

Gaultier, C. (editor), 2008, “Genetic Basis for Respiratory Control Disorders”, Springer US, online ISBN 978-0-387-70765-5

Genton, L. et al, 2011, “Nutritional state, energy intakes and energy expenditure of ALS patients”, Clinical Nutrition, Vol. 30, Issue 5, 553-559, doi: 10.1016/j.clnu.2011.06.004

Geser, F. et al, 2008, “Evidence of multysistem disorder in whole-brain map of pathological TDP-43 in ALS”, Arch. Neurol., 65(5):636-41, doi: 10.1001/archneur.65.5.636

Glass, J.D. et al, 2012, “Lumbar intraspinal injection of neural stem cells in patients with ALS: results of phase I trial in 12 patients”, Stem Cells, 30(6):1144-51, doi: 10.1002/stem.1079

Gordon, P.H., Miller, R.G., dan Moore, D.H., 2004, “ALSFRS-R”, Amyotroph. Lateral Scler. Other Motor Neuron Disord., Suppl. 1:90-3

Gordon, P.H. et al, 2010, “Progression in ALS is not linear but is curvilinear”, Journal of Neurology, 257:1713-177, doi: 10.1007/s00415-010-5609-1

Hillel, A.D. et al, 1989, “Amyotrophic Lateral Sclerosis Severity Scale”, Neuroepidemiology, 8: 142-150

Iwata, N. K., 2007, “Objective Markers for Upper Motor Neuron Involvement in ALS”, Brain Nerve, 59(10)

Jawaid, A. et al, 2010, “A decrease in Body Mass Index is associated with faster progression of motor symptoms and shorter survival in ALS”, Amyotrophic Lateral Sclerosis, Vol. 11, No. 6, 542-548, doi: 10.3109/1748968.2010.482592

Kiernan, M.C. et al, 2011, “Amyotrophic Lateral Sclerosis”, Lancet, 377:942-55, doi: 10.1016/S0140-6736(10)61156-7

Lillo, P. et al, 2012, “ALS and frontotemporal dementia: A behavioural and cognitive continuum”, Amyotorph. Lateral Scler. , 13(1):102-9, doi: 10.3109/17482968.2011.639376

Lindvall, O. dan Kokaia, Z., 2010, “Stem cells for human neurodegenerative disorders – time for clinical translation?”, Journal of Clinical Investigation, Vol. 120, 29-40, doi: 10.1172/JCI.40543

Lunn, J.S. et al, 2011, “Stem cell technology for neurodegenerative diseases”, Annals of Neurology, 70(3): 353-361, doi: 10.1002/ana.22487

McCarthy,  J., editor, 2012, “A Manual for People Living with ALS”, 7th Edition, ALS Society of Canada, www.als.ca

McCombe, P.A. dan Henderson, R.D., 2011, “The role of immune and inflammatory mechanisms in ALS”, Current Molecular Medicine, 11. 246-254

Mitchell, G.S., 2008, “Respiratory plasticity following intermittent hypoxia: a guide for novel therapeutic approaches to ventilator control disorders?”, in Gaultier (2008)

Miller, R.G., Mitchell, J.D., Moore, D.H., 2012, “Riluzole for ALS /MND”, Cochrane Database Syst. Rev., 14:3:CD001447, doi: 10.1002/14651838.CD1447.pub3

Mitsumoto, H., editor, 2009, “Amyotrophic Lateral Sclerosis: A Guide for Patients and Families”, 3rd Edition, Demos Health, New York

Moreau, C. et al, 2012, “Modifying effect of arterial hypertension on ALS”, Amyotroph Lateral Scler., 13(2):194-201. doi: 10.3109/17482968.2011.610110, http://www.ncbi.nlm.nih.gov/pubmed/21913867

Moss, H. E. et al, 2012, “Cross-sectional evaluation on clinical neuor-ophthalmic abnormalities in an ALS population“, Journal of Neurological Science, 314 (1-2), 97-101, doi:10.1016/j.jns.2011.10.016

Pagani, M.R.,  Gonzalez, E., and Uchitel, O.D., 2011, “Autoimmunity in ALS: Past and Present”, Neurology Research International, Vol.2011, Artice ID 497080, Hindawi Pubishing Corp., doi:10.1155/2011/497080

Paganoni, S. et al, 2011, “Body Mass Index, not dyslipidemia, is an independent predictor of survival in ALS”, Muscle & Nerve, Vol. 44, Issue 1, 20-24.

Peters, M. et al, 2013, Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions”, Health and Quality of Life Outcomes, 11:103

Pioro, E.P., 1997, “MR Spectroscopy in ALS/MND”, Journal of Neurological Science, 152, Suppl: 1:S49

Redler, R. and Dokholyan, N.V., 2012, “The Complex Molecular Biology of ALS”, Prog. Mol. Biol. Transl. Sci., 107:215-262, doi:10.1016/B978-0-12-385883-2.00002-3

Reynaud, E.,2010 , “Protein misfoldings and degenerative diseases”, Nature Education, 3(9), 28, www.nature.com/scitable/topicpage/protein-misfolding-and-degenerative-diseases-14434929

Scherer, K. dan Bedlack,R.S.,  2012, “Diaphragm pacing in ALS: a literature review”, Muscle Nerve., 46(1):1-8, doi: 10.1002/mus.23419

Sharma, R. et al, 2012, “Oculomotor dysfunction in ALS: A comprehensive review“, Archive of Neurology, Vol. 8, No. 7, http://www.archneurol.com

Shefner, J. et al, 2012, “Safety, tolerability and pharmacodynamics of a skeletal muscle activator in ALS”, Amyotroph. Laterl. Scler., 13(5):430-8, doi: 10.3109/17482969.2012.684214

Simmons, Z., 2005, “Management Strategies for Patients with Amyotrophic Lateral Sclerosis from Diagnosis to Death”, The Neurologist, 11:257-270

Tai, Y. F. and Piccini, P., 2004, “Application of Positron Emission Tomography (PET) in neurology”, Journal of Neurology, Neurosurgery, and Psychiatry, 75: 669-676, doi: 10.1136/jnnp.2003.028175

Turner, M.R., Swash, M., and Ebers G.C., 2010, “Lockhart Clarke’s contribution to the description of ALS”, Brain, 133(11):3470-9. doi: 10.1093/brain/awq097S

Turner, M.R., et al, 2011, “Biomarkers in ALS“, Lancet Neurol, 8:94-109

Vaisman, N. et al, 2009, “Do patients with ALS have increased energy needs?”, Journal of Neurological Sciences, Vol. 279, Issue 1-2, 26-29, doi: 10.1016/j.jns.2008.12.027

Watts, C.R. & Vanryckeghem, M., 2001, “Laryngeal dysfunction in ALS: a review and case report”, BMC Ear, Nose, Throat Disorders, I:1

Wijesekera, L.C.  and Leigh, P.N, 2009, “Amyotrophic Lateral Sclerosis”, Orphanet Journal of Rare Diseases, 4, 3, doi: 10.1186/1750-1172.4-3

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